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Josie
01-28-2010, 08:32 PM
some info here: http://www.wemove.org/rls/rls_cor.html

Though, there are quite a few places to get info... anyone else deal with restless legs?

If so, have you found any simple ideas to be at least a partial help?

Grrr @ docs. I have taken Reglan, and the doctor prescribing knew very well that I struggled with my legs. Another reminder I need to research the shit out of every. single. thing.

Absinthe
01-28-2010, 08:48 PM
While driving home today I listened to talk radio for a while. They actually talked about RLS. I am not sure if it really helps, but they talked about putting a piece of soap under your sheets:

http://www.peoplespharmacy.com/2009/11/10/soap-story-convinces-skeptic/

CrAnIuM
01-28-2010, 08:50 PM
While driving home today I listened to talk radio for a while. They actually talked about RLS. I am not sure if it really helps, but they talked about putting a piece of soap under your sheets:

http://www.peoplespharmacy.com/2009/11/10/soap-story-convinces-skeptic/

Da fuck you talking about ?


Goddamn hippies ...

Incognito
01-28-2010, 09:21 PM
I think I have a mild case of RLS. Some nights when I'm trying to go to sleep, I get this uncomfortable urge to move my legs. It feels like the muscles just want to jump out of my skin... and the only thing I can do to relieve it is to curl my toes and flex my leg muscles until it stops. I hate the feeling... but thankfully, its not a nightly occurrence and usually doesn't last any longer than an hour or two.

Gravy
01-28-2010, 09:24 PM
I get some of the symptoms but I wouldn't put it down to it being a disease as such. Most blokes I know do the "leg bounce" when sitting for extended periods of time.

Josie
01-29-2010, 05:03 AM
While driving home today I listened to talk radio for a while. They actually talked about RLS. I am not sure if it really helps, but they talked about putting a piece of soap under your sheets:

http://www.peoplespharmacy.com/2009/11/10/soap-story-convinces-skeptic/

As gay as it sounds. I tried it. For 2 weeks. It ended up just being annoying, and my toddlers tried to remove the soap and chunk it around the bedroom. Every. Single. Morning. I noticed no improvement - but yay for those who do :)


I think I have a mild case of RLS. Some nights when I'm trying to go to sleep, I get this uncomfortable urge to move my legs. It feels like the muscles just want to jump out of my skin... and the only thing I can do to relieve it is to curl my toes and flex my leg muscles until it stops. I hate the feeling... but thankfully, its not a nightly occurrence and usually doesn't last any longer than an hour or two.

You = Lucky. If it was something I only dealt with on rare occasion, I probably wouldn't even think about it. But it's everytime I sit, lie down, am tired, be still... pretty much stop moving.

Ha. I was in the ER recently for flu/prego issues and they kept trying to get me to be still so they could strap all their monitors to me and my legs just. kept. jumping. The nurse was almost a little too excited to 'meet' someone with a real issue of jumpy legs. Consequently, they got zero worthwhile monitoring offa me - and I still ended up having to sit in that dumb position for an hour. Bad times.

I can supress and supress the urge to move - that almost 'electrically charged' feeling - for a little bit... but then a huge involuntary jerk results, moving my entire body... and bashing anyone nearby. Bah. When I was a teen, I'd never heard the medical term "RLS" and was attempting to describe my sleep issues. I told her it was like my legs were batteries, being charged, and then having to release it. She told me I had leg cramps. Oi.

Charlie horse and jumpy legs = two very different things. When I don't get enough calcium or potassium.. I do get charlie horses. Not the same thing. At all.


I get some of the symptoms but I wouldn't put it down to it being a disease as such. Most blokes I know do the "leg bounce" when sitting for extended periods of time.

leg bounce... as in the voluntary leg wiggle ? Or the sudden *bash boom* into the bottom of the table that leaves everyone around like 'wtf is your problem' ?

I really am wondering- because it would be strange to me that you know a lot of people with the same issue when I know very few - and almost all are female.

funeeman
01-29-2010, 09:23 AM
My cousin has this. The one thing they did is put her on Minerals. . . high in iron and I think vitamin B. Kind of a natural thing. This helped slightly. Then she was told to do moderate (not strenuous as it makes it worse to over work the muscles of the legs) exercise 3-4 times a week. After like 2-3 months this really helped the most. I know she has to avoid all caffeine, tea, coffee, pop and cold medications like benadryl because they make it worse. Also if you're on antidepressants or bi polar meds this can trigger episodes.

I don't think there is a cure for it. . .but doing the mineral and exercise can alleviate it all or reduce it by quite a bit. Its also rumored that playing with your vagina on web cam for middle aged men in the middle of the US will reduce it by 90%. I'm kind of busy but I'd be will to take one for the team to try and help you.

Josie
01-29-2010, 09:11 PM
Thank you - this post is quite helpful :D


My cousin has this. The one thing they did is put her on Minerals. . . high in iron and I think vitamin B.

I have been doing this too. It doesn't really seem to help my legs, but the B vitamins seem to help better regulate my night/day orientation (I have a very difficult time sleeping.. mainly because of the jumping)


Then she was told to do moderate (not strenuous as it makes it worse to over work the muscles of the legs) exercise 3-4 times a week. After like 2-3 months this really helped the most.

I'll be trying this. I always thought exercise to be unhelpful because I was very active before kids - no change. However, I don't think I've ever not pushed myself during exercise. I know this is the recommendation they give for fibromyalgia too - so theoretically, it should help both. That would be awesome :)


I know she has to avoid all caffeine, tea, coffee, pop and cold medications like benadryl because they make it worse. Also if you're on antidepressants or bi polar meds this can trigger episodes.

^ this... spells DEATH =( I love coffee and tea. Didn't know about benadryl either. Also, during their experimental medicine period for fibro, they had me on several different anti-depressants that brought results in some cases of fibro... which might be why the gabapentin (which worked at first) suddenly stopped helping the RLS after about two weeks. I was on an anti-depressant/fibro thinger at the same time.


Its also rumored that playing with your vagina on web cam for middle aged men in the middle of the US will reduce it by 90%. I'm kind of busy but I'd be will to take one for the team to try and help you.

Mhmm... you *do* realize I'm preggers, right?

KommieKat
01-30-2010, 07:49 AM
This is what happens when you have your legs over your head one too many times

Josie
01-30-2010, 12:18 PM
This is what happens when you have your legs over your head one too many times

Good thing your quip makes no sense ;)

I've already mentioned I've had this issue since I was a little girl.

4nik8
01-31-2010, 11:34 PM
Mhmm... you *do* realize I'm preggers, right?

You say that like it should seem nasty.....

Kashmir
01-31-2010, 11:55 PM
some info here: http://www.wemove.org/rls/rls_cor.html

Though, there are quite a few places to get info... anyone else deal with restless legs?

If so, have you found any simple ideas to be at least a partial help?

Grrr @ docs. I have taken Reglan, and the doctor prescribing knew very well that I struggled with my legs. Another reminder I need to research the shit out of every. single. thing.

a disease?? well fuck..i don't deal with my legs..i just let them move..yours most move like hell for you to be looking for help..

Josie
02-01-2010, 02:28 AM
You say that like it should seem nasty.....

To most everyone here, it is.


a disease?? well fuck..i don't deal with my legs..i just let them move..

It is not just the movement (and I do not believe it to be a disease). It's also the sensation. Difficult to describe... like being electrically charged and a spreading irritating, fuzzy-ish feeling through my thighs.

Too, the movement is my entire leg jerking - thus jerking my entire body as well. That sort of disturbs the relaxation process leading to sleep... or during sleep- thus waking me up. Constantly.

When I was younger and did the sleepover thing at girlfriends' houses, they'd often kick me out of their beds or make me sleep away from everyone else because I moved so much.

And to further demonstrate just how long this has been building.. when I was 4-5 years old, my mother was pregnant with my lil brother. To be allowed to sleep in her bed with her, I had to train myself to only sleep facing the wall so I wouldn't kick her belly.


yours most move like hell for you to be looking for help..

Yes. Like hell would be about accurate.

funeeman
02-01-2010, 03:45 PM
Thank you - this post is quite helpful :D



I have been doing this too. It doesn't really seem to help my legs, but the B vitamins seem to help better regulate my night/day orientation (I have a very difficult time sleeping.. mainly because of the jumping)



I'll be trying this. I always thought exercise to be unhelpful because I was very active before kids - no change. However, I don't think I've ever not pushed myself during exercise. I know this is the recommendation they give for fibromyalgia too - so theoretically, it should help both. That would be awesome :)



^ this... spells DEATH =( I love coffee and tea. Didn't know about benadryl either. Also, during their experimental medicine period for fibro, they had me on several different anti-depressants that brought results in some cases of fibro... which might be why the gabapentin (which worked at first) suddenly stopped helping the RLS after about two weeks. I was on an anti-depressant/fibro thinger at the same time.



Mhmm... you *do* realize I'm preggers, right?
So? Pregger chicks are always horny. You'll just be kinkier.

4nik8
02-01-2010, 05:48 PM
To most everyone here, it is.
Shame.

For the pregnant wives anyway.

Kashmir
02-02-2010, 05:30 PM
To most everyone here, it is.



It is not just the movement (and I do not believe it to be a disease). It's also the sensation. Difficult to describe... like being electrically charged and a spreading irritating, fuzzy-ish feeling through my thighs.

Too, the movement is my entire leg jerking - thus jerking my entire body as well. That sort of disturbs the relaxation process leading to sleep... or during sleep- thus waking me up. Constantly.

When I was younger and did the sleepover thing at girlfriends' houses, they'd often kick me out of their beds or make me sleep away from everyone else because I moved so much.

And to further demonstrate just how long this has been building.. when I was 4-5 years old, my mother was pregnant with my lil brother. To be allowed to sleep in her bed with her, I had to train myself to only sleep facing the wall so I wouldn't kick her belly.



Yes. Like hell would be about accurate.

I have been reading about it and it's a lifelong condition for which there is no cure..try not to think about it and sleep alone always.

Josie
02-08-2010, 04:17 PM
I have been reading about it and it's a lifelong condition for which there is no cure..try not to think about it and sleep alone always.

Wow. So some site says there is no cure - so your advice is not to think about it? I prefer to think that anything neurological in the body can be managed in some way. And yes, even without drugs.

Actually, I pretty much think that about anything in or about the body that is undesirable to a person.

I get the quip at the end, but you're too retarded for sarcasm to be cute.

Mamba
02-09-2010, 03:56 PM
oOOH. I jerk a lot before sleeping, and I get the leg twitching thing..... I always assumed it was more-or-less normal.

They have a "medical name" for everything nowadays.

Josie
02-09-2010, 04:52 PM
oOOH. I jerk a lot before sleeping, and I get the leg twitching thing..... I always assumed it was more-or-less normal.

They have a "medical name" for everything nowadays.

I know, right? For the longest, I thought everyone must deal with the same thing and just somehow knew something I didn't. Then a family friend was going on and on about her RLS and how she had to stay on narcotics throughout her (2, one had to be aborted) pregnancy because of it.

Confused, I googled RLS and found that I'd been dealing with the same thing for most of my life. It kinda bothers me that there's a "name" and you can't just say 'jumpy legs' or some such without the 'syndrome' part.

It allows people to make excuses for themselves. "Oh, I have a disorder/syndrome/disease that takes responsibility where I don't want to."

I was on some very helpful medications before becoming pregnant again. However, the moment I ovulated and had had unprotected sex, I cold-turkeyed.

I know I'm veering off topic, but the whole medical minded steer of society frustrates me. Useful to me? Yes. But not an absolute way of life.

Also, that's why I'd like to find some other forms of dealing with my legs, because it is a fairly common thing - that I don't think should be a reason for a lifelong Rx note in the glove box.

Mamba
02-12-2010, 06:50 PM
Fuck diseases and syndromes. Unless it will kill you, I don't think much of them...You can live a perfectly normal happy life without having to resort to medications.

Pfft. Whatever next.

Narcotics for chattering teeth when you feel cold?

Ye Gods.

Josie
02-12-2010, 07:15 PM
Fuck diseases and syndromes. Unless it will kill you, I don't think much of them...You can live a perfectly normal happy life without having to resort to medications.

Pfft. Whatever next.

Narcotics for chattering teeth when you feel cold?

Ye Gods.

Generally... I'd agree with you. For me, the legs are a serious issue though.

It's 2 sided, really... there's the medical community, alongside the pharmaceutical companies handing out drugs like candy - and there's the people eating it up without thought.

med community/big pharma doesn't need to be doling out drugs like crazy. For many health issues, there are alternative treatments that are highly effective.

People don't need to be running to their doctor for every single twinge and whining to be doped up.

However... in some instances, a drug can greatly improve quality of life in certain situations. Though, I definitely believe these situations are few and far between. Why? Long term. If, for the short term, your quality of life is bettered - only to be curbed in the long term... what the hell?

My Father-in-Law had a very serious back injury that he had multiple surgeries on.. he has an extremely poor diet and literally eats (yes, eats, he says they work better that way) more pills in the first part of the day than food. I 100% believe he is in as much pain as he says he is. I 100% believe that his back does not work the way it should because of multiple factors.

However, I do not think that laying around in bed, eating narcotics, and feeling miserable is the path to a better life.

The money that has been sucked out of his life through all the ways his injury has affected his life could very well have been spent on alternative practices to solve the problem - not indefinitely mitigate the symptoms.

Anyhow. Blah. Me and my opinions.

Mamba
02-12-2010, 07:37 PM
Generally... I'd agree with you. For me, the legs are a serious issue though.

It's 2 sided, really... there's the medical community, alongside the pharmaceutical companies handing out drugs like candy - and there's the people eating it up without thought.

med community/big pharma doesn't need to be doling out drugs like crazy. For many health issues, there are alternative treatments that are highly effective.

People don't need to be running to their doctor for every single twinge and whining to be doped up.

However... in some instances, a drug can greatly improve quality of life in certain situations. Though, I definitely believe these situations are few and far between. Why? Long term. If, for the short term, your quality of life is bettered - only to be curbed in the long term... what the hell?

My Father-in-Law had a very serious back injury that he had multiple surgeries on.. he has an extremely poor diet and literally eats (yes, eats, he says they work better that way) more pills in the first part of the day than food. I 100% believe he is in as much pain as he says he is. I 100% believe that his back does not work the way it should because of multiple factors.

However, I do not think that laying around in bed, eating narcotics, and feeling miserable is the path to a better life.

The money that has been sucked out of his life through all the ways his injury has affected his life could very well have been spent on alternative practices to solve the problem - not indefinitely mitigate the symptoms.

Anyhow. Blah. Me and my opinions.

Yeah, I get that. I just think people overreact sometimes. I'm sure they help your condition a lot. I just mouthing off. :)

Josie
02-12-2010, 07:56 PM
Yeah, I get that. I just think people overreact sometimes. I'm sure they help your condition a lot. I just mouthing off. :)

Ain't that the truth. I've been having issues this pregnancy.. but the hospital here is totally fucked, so I don't want to go. However, all anyone can say is to run to a doctor for some procedure.

Procedure to check for issue --> issue caused by procedure --> intervention to stop caused issue --> more issues caused by further poking and prodding...

...until I end up with a damn c-section.

No thank you.

Mamba
02-12-2010, 07:58 PM
Ain't that the truth. I've been having issues this pregnancy.. but the hospital here is totally fucked, so I don't want to go. However, all anyone can say is to run to a doctor for some procedure.

Procedure to check for issue --> issue caused by procedure --> intervention to stop caused issue --> more issues caused by further poking and prodding...

...until I end up with a damn c-section.

No thank you.

Yeah, like people who get secondary infections from plastic surgery. Or that flesh eating disease.

Duh.

Kashmir
02-12-2010, 09:53 PM
I prefer to think that anything neurological in the body can be managed in some way.

fuck talk about retarded..what a joke..i would be good if that was true..and there is no cure..the treatments will just help reduce the problem..

Josie
02-12-2010, 10:43 PM
fuck talk about retarded..what a joke..i would be good if that was true..and there is no cure..the treatments will just help reduce the problem..

A gazillion years ago, an apeman grunted to his dude friend that birds are the only that can fly. And that's just the way things are.

You can never foresee the future and what we will learn in it ;)